Cure For Carson
Thank you for everyone who participated in our St. Dominic volleyball program’s 2018 Cure For Carson night. Between our fundraisers and the Burroughs family’s t shirt sales we raised over $1500!! Our Core family and St. Dominic family are so generous and supportive! Thank you!
Please click the above link to follow Carson's story, purchase an awareness shirt, and message about questions on how you can help!
The Burroughs family is a very important part of our Core Family and DomFam. This is a page to raise awareness about Sanfilippo Syndrome and help find a cure! Carson is Sara and Craig's 7 year old son and was diagnosed 2 years ago. Craig coaches in our program and has since the beginning. Carson's sisters Hannah and Addison play in our program.
What is Sanfilippo? Imagine Alzheimer's in children. In a nutshell, that’s what every family of children with Sanfilippo faces. Our children are born with a change in their DNA that causes a very important enzyme to be made improperly … or not at all. Because they don’t have enough of this critical enzyme, our children cannot breakdown and recycle natural cellular waste. Their cells become clogged with toxic levels of heparan sulfate. While every cell in the body is affected, brain cells suffer the most. Effects on the brain become apparent between 2-6 years of age – speech problems, developmental delays, challenging behaviors, extreme hyperactivity, and poor sleep. Many children are initially diagnosed with autism before finding the underlying diagnosis. Children go on to experience progressive dementia similar to Alzheimer’s, stealing away their skills and knowledge, until they pass away, often in their teenage years.
THEY CAN’T CURE SANFILIPPO ALONE… WE NEED YOUR HELP.
It’s not easy to cure a disease. It’s even harder to cure a disease most people haven’t even heard of. But it’s not impossible… In the last couple of years alone, the Cure Sanfilippo Foundation has made made amazing progress in raising awareness of Sanfilippo Syndrome and funding research toward developing a cure. But they didn’t do it by themselves… They did it with the help of people like you. Which is why we are asking you to join us in taking action.
WHAT CAN YOU DO TO HELP?
YOU CAN MAKE A DONATION.
It’s simple, but meaningful. We appreciate any and every contribution, and every dollar that you give helps us in our mission to fight to give our children a chance at choosing their future.
YOU CAN HOST A FUNDRAISER.
It doesn’t have to be grand or elaborate… We’ve had everything from middle school fund drives to driveway lemonade stands. And every single one of them has helped. If you want to hold a fundraiser, or have an idea you want to talk about, please don’t hesitate to contact us.
YOU CAN SPREAD AWARENESS.
This is also an easy one: just simply tell others. The entire success of our Foundation is due to compassionate people embracing our story and our hope, and taking action to tell others about it. Simply telling people you know about this website is a great place to start, but here are a couple other easy things you can do: